October 24, 2018
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October 24, 2018
14 of 14 people found the following review helpful
Wonderful. Educational. Poignant., May 10, 2016
Verified Purchase(What’s this?)
This review is from: Forgotten Plague (Prime Video)
I’ve lived with ME/CFS and Fibromyalgia for six years now, and this was the documentary was everything I was hoping it would be- and more. Watch this to educate yourself and spread the word for the need for a cure, please. Thank you to Ron Davis for an incredible, and emotionally moving documentary.
6 of 6 people found the following review helpful
Changed my life, June 19, 2017
By Doreen Barr (New Jersey, USA)
Immediately after watching this film my husband found me SOBBING in the living room. I was diagnosed with Fibromyalgia 10 years ago although symptomatically I have suffered much longer than that. Both Fibro and CVS are closely related and share many of the same horrible symptoms as well as the general skepticism from everyone except the sufferers. I have been treated as a lying, hysterical, drug seaking, hypochondriac from the physicians I sought help from. Skepticism from the public in general. But most unbelievable and truly heartbreaking disbelieved by my family. Besides the devastating adverse effects of it totally destroying my life, it took away all sense of being loved, respected and safe in the world. I had always assumed no matter what my family would be there for me. Finding out differently has made me and my life are totally worthless. I don’t care if I die because I’m not really alive anyway. When I saw how these people had physicians and family that believed them and were trying to help them I just cried. It taught me that I am not worthless. The people in my life were. It gave me the first glimmer of hope in 10 years. A must see for the hidden illness – the broken spirit.
15 of 15 people found the following review helpful
You Can’t Solve a Problem You Won’t Admit Exists, June 5, 2016
By Amazon Customer
This and “I Remember Me’ may have some real impact for those who actually try to understand this real and devastating illness and not just write it off as “hysteria” or “malingering”. I’m sure it will help those who have it as one common thread is how important it is to know it is “something” and not just “in your head”…. to have a name for it even though the name is derisive in itself. I’m still after more than 20 years angry as hell over the mistreatment and lack of treatment or even any manner of basic understanding by others. It makes one so alone but that anger is energy and can be transformed into the energy to get through one more day… and then another.
If you watched this or think of watching it I highly recommend also seeing “I Remember Me” because, for example, it helped me some to find out that diseases understood as having huge impact on living and even death as a result, like cancer and multiple sclerosis, were once thought of as “repressed anger’ or “hysterical paralysis” before the underlying causes were understood widely. That day needs to yet happen for this “plague”.
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